Not a day has gone by since we
found out that Mike has secondary MDS that I have not cried. I have cried tears
of fear, tears of happiness at a remembered memory, tears of confusion and
tears of sadness. I have cried because of a song that played and because I lay
next to him in bed knowing that there may be a day in the nearer future than I
am prepared for that I don’t get that privilege. I cry so my kids don’t have to and so they can,
so they can feel secure. They have to know they are not alone, if they see
nothing but strength how will they know it is ok to be scared, confused, sad, and
even happy. Some people see this as weakness or a lack of faith. Since this
show of emotion is out of my control I don’t believe that. It is just how my
spirit is processing and preparing for the fight ahead, my tears cleanse my
spirit so that I have the strength to get him through the fight we are getting
ready for; I will need to be his rock, his cheerleader and his shoulder so I
need to deal with my feelings now. So this does not make me weak it is the
process of making me stronger. I also don’t see this as a lack of faith, I trust
my God, I lean on my God, my God is who I cry too, but to trust God is also to trust
his will and to know that his will may not be the same as mine, he may need my
best friends for something that I don’t understand leaving me here to grieve
his loss and to pick the pieces up and put them back together so rather I see
my tears as a confirmation of faith. God’s will is not always answered prayers.
If I told you that I trust God will save Michael’s earthly life I would be lying
to you, I do believe that his will is going to be done and that he will make
the best decision for the love of my life and that gives me some peace, but it
still causes human and spiritual emotions that I cannot just turn off.
I also
want to say something about marrying your best friend, when you marry your best
friend you have something precious it is a different love but also deep
friendship, intimacy, a level of knowing each other that is hard to describe,
honesty, vulnerability, trust. Michael is truly the only person in this world
who knows me inside and out and me him, he is the only person I fully trust on
this earth and there is no one else I can be myself around like I can him. He
knows all my funny secrets and all my serious ones. He could ruin my street
cred with one Facebook post lol I have been told by other friends or just
people I have come in contact with that it is weird that I always “got” to have
Mike with me or that I don’t like to do things without him. First I don’t “got”
to have him with me, I enjoy having him with me no matter what I am doing and
have since our first date. Don’t get me
wrong, I have my girl time, but I don’t need to go without him to enjoy myself,
whenever I have gone out without him I feel the absence and usually call him
anyway lol. We disagree, and often, because we are both hard headed, but I can
count on one hand the number of times we have fought, or really gotten mad at
each other. People sometimes think we are upset at each other or in a fight
because of how we talk to each other but it is just us, I am his bitch and he
is my asshole. His oldest sister once said that I was a female Michael, I didn’t
appreciate that at the time lol but I do now. I have spent 13 years with my
best friend, my soul mate and the love of my life, we have had downs don’t get
me wrong, there was one time in our marriage that we were at a cross roads,
however we decided we were worth fighting for and we just needed to be reminded
of who we were together and eliminate the people in our life that were trying
to tear us down as a family. I know some can relate to this as they are also
married to their best friend, and others cannot relate. Let me tell you it is amazing
to build a life with your best friend, I would not trade it for anything in the
world and I feel so lucky. I, however also have a lot to lose if God’s will is
to not my will, I will lose a big piece of my heart and myself that can never
be replaced a one of a kind love.
These are things that have been on
my mind the last few days and I will likely be blogging more as we go through
this journey, even though I want to blog all the time I am usually more driven
when something big is going on in my life. I share my journey as a caregiver a
wife and a mother because I know that others go through some of the things I
do. Maybe someone will read one of my posts and not feel so alone. Also I hope
that some of my posts make others think and maybe be able to relate more and
possibly know better how to respond, or at least understand those in their life
that may be facing something. Everything is not as simple as “have faith” or “be
strong”, just because someone may not fit into a box of what one thinks faith
and strength look like doesn’t mean they are not strong or trusting God.
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